Poet Andrea Gibson helped me understand that there is a place in this world for sick people, and also people who are soft, sensitive, attuned, prickly, dealing with some shit… In gratitude for Andrea, and in some kind of attempt to imitate their way of approaching the world, I’m gonna share a poem.
It might feel heavy to read. For the first time, this year, I am experiencing a freedom and space from the worst of my illness in a way that is allowing me to see it as a whole thing, not just taking it one hour at a time. So there’s a lot of “woah, that was sad.” And, “dang I wish that hadn’t happened that way.” And it’s healthy for me. So here’s where I’m at right now: well-fed, broke, and re-connecting with some hope.
Reserves
You wake up one morning with nothing left
Your stuff is all there
Your schedule is full
But you
Have nothing left
Starting from zero
Your vitality bar or whatever that metric is in video games is empty
What do you do?
You dig
First you dig into the thick cream layer floating at the top
And it feels good, at first, to dig, to push, to realize you have way more to give than you ever knew
Then you dip into the milk, much thinner than the cream, but it sustains you
It feels like it goes on forever
A tall glass bottle, straw burrowing
all the way down
It thins to water
Salt water
Ocean water
The salt sends your blood pressure soaring
The minerals stand in for sleep
And the kelp makes you gag
You can live on this too, you think
Not forever of course
It’s not pleasant
But you’re surviving
Maybe for months on salt water
Maybe for years
And then it dries up
And you are grabbing, pounding, scraping at dust
The color of stained enamel
Drying and flaring your cuticles
You continue to dig
Because even handfuls of dust can go into the engine and make it go. Just a few more miles, a few more hours, one more drive, just pick your head up off the pillow. Good. Now take a sip of water. Now rotate your head, look toward your bedroom door, and make your body follow. Nice. One more step. That was the hardest one. The rest will be easier. See. Now you have momentum. Now take another handful of dust.
The problem with dust - my mechanic uncle will tell you - is it gums up the works. It scrubs the finish, clogs the joints, and if you don’t flush it out every once in a while, it’ll shut the whole thing down. Not all at once of course. Piece by piece. The exhaust. Then the wheel bearings. And then one day something vital and volatile like the gas tank will fall out, dragging sparks on the tar behind you.
These things happened to my car. They also happened to my body, you know,
metaphorically.
It’s not just the infection. We killed that off three years ago. It’s the dust that I put into my system for decades, running on empty. It’s gummed up the works and now everything runs slow.
It sounds weird, like, how would you know that? But if you’re a person whose cells ran on dust you know what it feels like. You can actually feel the clogs.
Lately I put everything good in: vitamins, vegetables, oily fish, love.
I’m sorry I fed you dust for so long. I didn’t know what it felt like to wake up with fuel in the tank.
But I’ve come far. I’ve stopped digging for dust. I’ve re-established my ocean. Deep deep in there I can sense that brackish fuel. But I don’t want to rely on that either. Lately the pads of my fingertips are pruny all the time - maybe it’s the salt?
I even have a small bottle of fresh milk. The cream at the top is gone almost as soon as it appears - like it does in any household when the milk gets delivered.
I’m still waking up at zero. Zero spoons. Zero pep. Like if I close my eyes too long at any point during the day I could fall asleep right there. But now I can sense when I’ve run out of the good stuff. I’m watching the gauge. When I start into the seawater, I almost panic. Not this briny shit again. I stop. I cancel. I mope. I ask for guidance. I ask for help.
And by some miracle, the bottle fills again.
How are you lately, you ask.
I’m trying very very hard not to finish the milk.